Films about M.E.

  • Unrest

    Jennifer Brea's Sundance award-winning documentary, Unrest, is a personal journey from patient to advocate to storyteller. Jennifer is twenty-eight years-old, working on her PhD at Harvard, and months away from marrying the love of her life when a mysterious fever leaves her bedridden. When doctors tell her it's "all in her head," she picks up her camera as an act of defiance and brings us into a hidden world of millions that medicine abandoned.

  • Forgotten Plague

    A journalist afflicted with the underresearched debilitating condition known as Chronic Fatigue Syndrome embarks on a quest to find out why the CDC and medical system have neglected his disease and left millions sidelined from life.

  • I Remember Me

    In 1984-85, people at Lake Tahoe fell ill with flu symptoms, but they didn't get better. Medical literature documents similar outbreaks: in 1934 at LA county hospital, in 1948-49 in Iceland, in 1956 in Punta Gorda, Florida. The malady now has a name, chronic fatigue syndrome, and filmmaker Kim Snyder, who suffered from the disease for several years, tells her story and talks to victims and their families, and to physicians and researchers: is it viral, it is psychosomatic, is it one disease or several (a syndrome) ; what's the CDC doing about it; what's it like to have a disease that's not yet understood? Her inquiry takes her to Punta Gorda and to a high-school graduation.

  • What About ME

    Inside the dramatic search for a cure to ME/CFS.17 million people around the world suffer from what ME/CFS has been known as a mystery illness, delegated to the psychological realm, until now. A scientist in the only neuro immune institute in the world may have come up with the answer. An important human drama, plays out on the quest for the truth.

  • Left Out

    It was a project birthed in hope. Pal Schaathun, a Norwegian filmmaker would document what many hoped might be the end of chronic fatigue syndrome (ME/CFS). That, unfortunately, turned out not to be but this film ended up documenting the next best thing. It managed to vividly portray the needs, hopes and desires of a community desperately yearning for health as it embarked on its first real shot for success.

  • Invisible

    Desperate to help his mother fight her symptoms, filmmaker Nick Demos meets a young athlete, a human rights advocate, and a struggling migrant - all in different stages of the often-debilitation pain syndrome, Fibromyalgia. Invisible traces how the illness affects their careers, dreams, and relationships. It also exposes their fight with insurance and drug companies for proper treatment and how their access to holistic health and education is determined by class and money. Will Nick be able to find answers or is his mother already a best case scenario in a broken healthcare system?

Books about M.E.

  • The Long Haul

    To the world’s public health authorities, Covid-19 would either be a deadly disease for some, or it would be a simple respiratory illness for most—cleared up in a couple of weeks. But then tens of millions around the world got sick and stayed sick. With scientists and doctors caught off guard, these patients often found solace only in themselves, organizing support groups across continents while ill in bed.

  • Understanding Myalgic Encephalomyelitis

    This easy to read, hard cover, coloured, library quality 8.5 x 11-inch (22 x 28 cm) book with sewn pages is the best and most comprehensive book ever written on M.E. and CFS containing essential advice for patients and physicians.

  • The Puzzle Solver

    The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son is a book by Tracie White with scientist Ronald W. Davis about Davis's efforts to cure his son Whitney Dafoe, who has very severe myalgic encephalomyelitis, also called chronic fatigue syndrome.

  • Understand M.E. before you judge me.

    For anyone suffering from Chronic Fatigue Syndrome and Myalgic Encephalomyelitis who want to try and figure out what's causing you to feel unwell. Don't worry if you don't have any major health issues, if you just want to be more mindful of your health and wellbeing and just want to raise awareness about Chronic Fatigue Syndrome and Myalgic Encephalomyelitis, then this diary is still great for you.

  • HELP ME! What I Wish Families Knew About ME/CFS

    This book pleads for families, partners and friends to educate themselves about this horrific illness that literally rips families apart. Divorce rates are over 75% for couples when a spouse has been diagnosed with ME/CFS. A frightening statistic. It is written for those who are in limbo, suffering still without a diagnosis, and this book is also written to educate families and friends of persons with ME/CFS.

  • Beginner's Guide to ME/CFS

    It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference.